HI Step Back,

 I'd like to offer empathy.  Also, a suggestion you may know about (though it may be no longer useful to you.)   There are a couple of research companies that will do a lot of looking up on treatments, given a diagnosis, and people have apparently made good use of these.  (I'm not finding the links easily; there was a write-up in the LATimes a couple of years ago and I could look for it, if you're interested.)

Thanks for the empathy. Something like this?